Any advice appreciated....

15 years 10 months ago #18398 by Leigh
Replied by Leigh on topic Any advice appreciated....
Dear Melissa,

I just wanted to say welcome to the forum and wish your father all the very best with his first chemo this Friday.

Gemz/Cispl is far less toxic than other chemo regimes and many people including me had few side effect except tiredness and low blood counts.

I hope your dad sails through his chemo and has fantastic results...

Wishing you and your family lots of strength during this time..

Leigh

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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15 years 10 months ago #18380 by Gene Beane
Replied by Gene Beane on topic Any advice appreciated....
I see your Doctor has great credentials, he studied and had a fellowship from Sloan Kettering, Lets see how he reacts to the chemo, and pray it does its job on the cancer, then who knows about the time element.. Ginger

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15 years 10 months ago #18379 by Gene Beane
Replied by Gene Beane on topic Any advice appreciated....
Melissa,
I would be optomistic about the time frame, I cannot say for sure but I know some here have made it longer than previous told by the surgeons. It all depends on how he reacts to the chemo and if it works really well for him. We send many to Sloan Kettering , is it in your area? Just curious. No symtoms is strange, most have blood in the urine and frequent urination. The chemical plant, have they had others come down with bladder cancer? We will put you and your family on our prayer chain, we have so many at this time, you are on the list!!!!! LOTS OF PRAYERS FROM CLEVELAND OHIO Ginger

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15 years 10 months ago #18377 by Mel09
Replied by Mel09 on topic Any advice appreciated....
Hello,

My parents live in Ocean Township (which is near Deal and Long branch), his oncologist is in West Long Branch but he has also seen a Dr. Robert Weiss at the Cancer Institute at Robert Wood. He is a urological surgeon. Both agree with the treatment right now. I guess I am just wondering if the 15-20 months that they told us is about accurate, or if there are people who have made it longer? He had no symptoms prior to diagnosis and this was only discovered because he was sent for a test by his previous employer (he worked in a chemical factory for 40 years). He is experiencing pain in his leg and we now know that this is a "hot spot". Any encouragement is greatly appreciated as this is an extremely difficult time right now.

Thank you for all of your prompt replies,

Melissa

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15 years 10 months ago #18375 by Gene Beane
Replied by Gene Beane on topic Any advice appreciated....
Melissa,
Boy thats a bit of bad news to say the least. You had a second opinon , by Doctors who are specialists in this field. The chemo he is having seems to be standard for what he has been diagnosed. Karen will chime in as her husband is being treated with med's that hit this situation. Dad is 65, so I imagine he isn't ready to give up at all, and I agree, he has to remain positive, they can do so much to extend life for him, Karen husband was stage 4 last year and he is holding his own right now. It is so important he keep that positive attitude, with our prayers he may just fool everyone and stick around a long time.. Ginger Beane

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15 years 10 months ago #18373 by momof4
Replied by momof4 on topic Any advice appreciated....
Hi Mel09,

A fellow Jersey Girl (I live in NC now) but my mom lives in Spring Lake, my sister in Manalapan, and my brother in Berkeley Hts...welcome...I wish it were under different circumstances...

My husband also has metastatic bladder cancer to the bone...it is a tough nut to swallow...Where is your father being treated? NY?

Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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