Biopsies Tomorrow

Forgot - MD said BCG still viable for maintenance only.  If there is recurrence he will refer me to Dr. Lee - running newer clinical trials - or talk alternatives.  

Last night and this morning I had clots and blood passing.  I have seen small clots before but never like this.  Contacted Moffitt and shared pics (I know eww).  They said it's normal for up to 2 weeks and go to ER if I can't urinate or if bright red blood doesn't stop.  

It did though I continued to have on and off clots and darker blood throughout the day.   Seems to have resolved now.

Since we missed MD call after TURBT last week I was able to confirm there were no lesions visually.  Two areas biopsied and results due next week.  

I had a recurrence of T1G3 non-invasive BC end of last year with TURBT in January.  

BCG had been stopped in March 2021 due to joint flare ups - knees and one elbow.

Moffitt was willing to retry BCG in February.  I made it through 5 of 6 week reintroduction.  Then had swelling of left knee which was drained and is fine.

My follow up biopsies have been delayed a few times and I’m going in to tomorrow for the TURBT biopsies.  

Obviously nervous but coming to terms with fact that I can’t control this disease and need to listen to and rely on my doctors.

To me the toughest time is waiting for the results.  And worrying what the options will be.