Many thanks to all of you who have responded. I did take AZO for about the first two weeks and yes it did help. Not complete relief but it helped. Then I started getting short of breath and coughing and I read that too much AZO can cause that, so I stopped taking the AZO. I was also on oxybutynin which was giving me super dry mouth, bad taste in mouth and constipation so I had to stop taking that also.
A bit more background, I've been fighting low grade for over 5 years. I've had biopsies taken 3 different times and TURBT three times and cystoscopies with fulguration (when needed) every 3 months. The last biopsies showed some high grade (non invasive) both at the mouth of the bladder, inside the bladder and in the prostatic urethra. My URO at first recommended a cystectomy because he felt the BCG would not work inside the urethra, but he sent me to Seattle to U of W medical center for a second opinion and they said I should do BCG. They said it would "find it's way" into the urethra. So my URO agreed to try BCG but he wanted to make sure the urethra was exposed so half way through each treatment I was to urinate a very small amount and then stop in order to help expose the urethra to the BCG. On the first 4 treatments I was able to do that successfully but on the fourth one that process caused intense pain. On the fifth and sixth treatments I was unable to do that but did complete the treatments otherwise. Of course, I have spoken to the doctor about the ongoing pain and while they express surprise that the pain is still ongoing, they've not suggested "why". They did say they might put me on a "pain management" program. I go back on the 10th for the cystoscopy but right now I worried I won't be able to tolerate the procedure even. The last few days I've been taking Tylenol 500 mg 3 or 4 times a day and that has helped some but the burning is still there, sometimes worse than others.