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To BCG or to R/C

4 months 3 weeks ago #58017 by sara.anne
Depends on whether the papillary was high grade or low grade. CIS is always high grade and so is more likely to spread than a low grade. If the papillary was high grade that means it has the potential to spread.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 months 3 weeks ago #58016 by swarmy2007
Which is most likely to spread....Papillary or CIS? I have CIS. Doing 3rd Gemzar treatment tomorrow then scope in 1st week September then if back they said R/C. Every cytology I've had since beginning has came back as CIS even after TURBTS so I guess my bladder just full of cancer and it's a wait for a tumor to do anything. Sounds sorta like a dangerous whack a mole game here. Seems more I learn about this less I know. Thanks for ur input.

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4 months 3 weeks ago #58013 by Atlanta51
My thoughts based on my history and not a recommendation. Diagnosed T1. To date, two TURBTS and 9 BCG treatments. At this point, several clear cystoscopes and FISH tests (for now, cancer free). In my case, BCG has proved highly effective. Pending resolution of the BCG shortage, planning for additional treatments.

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4 months 3 weeks ago #58012 by Momar
Thank you for the support. Did you do maintenance BCG?

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4 months 3 weeks ago #58011 by sara.anne
They want to wait until the bladder has completely healed from the TURB before they use BCG.
So that is not an uncommon length of time to wait.

Here’s hoping he has as much success as I did , BCG is really wonderful to have for high-grade noninvasive bladder cancer

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 months 3 weeks ago #58010 by Alan
Pretty typical to wait 6 weeks to heal. I trust you will have success also. I am about 11 years past!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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