Hi,
I have to say I'm flabbergasted that the doctor wants to continue maintenance at the regular dose. On the other hand, I respect the approach of "don't mess with success". And yes, CIS is dangerous and if it doesn't respond to BCG bladder removal is the other choice people are usually given. It could be worth it, but then again BCG can really mess up someone's bladder if they are oversensitive to it. And make someone very sick, as you've seen...
The research coming out of Europe has been saying for years that lower doses are ok. Lamm himself advises lowering the dose in the face of bad side effects and I'd say your husband fits that bill more than any I've met...
I don't think Dr. Lamm is on the payroll of any pharm. company.
Your consultant is correct about the UK and the US doing things differently when it comes to bladder cancer..but when it comes to the subject of lowered doses of BCG the bulk of that research originated in Europe.
If I were in your husband's shoes, I think I'd get another opinion about it all.
Wendy