The things you mention are some of the biggest problems with bladder cancer and experts are wish that less surveillience was necessary, but till now there are no other options good enough to replace cystoscopy.
Constant treatments, scopes and catheterizations take a toll. It's worse for post-menopausal women whose bladder linings become thin, but thankfully perforation rarely happens.
Some people experience ongoing pain due to the cystos and TURs and it can take many months to subside. That said, I'd look into kidney pain, if I were you.
Some people can't tolerate any BCG at all, and those who manage to get far into maintenance eventually do experience side effects after a while, even if they did not in the beginning. It's tough! Nobody said it was easy.
Why 4 TURBs this year, were they in between BCG treatments? I'm confused.
Wendy