Every once in while, I feel the need to share this part of my husband's story. Reading Steve's post just reminded me of that need to share. My husband was 6 months past finishing a 3 year BCG regimen when he began having visible blood in urine and intense urinary problems. The uro did a cysto and decided his "red patches" were still from the BCG reaction. "Still needs to heal" he said. The problems got worse and a CT was done. "All clear" he said. Problems continued and he did a biopsy. "Looks like a superficial reoccurance" he said. THEN, the pathogy showed muscle invasive so we went looking for a surgeon. Pre-op CT scan showed liver, lung and bone mets. ALL OF THIS OCCURRED WITHIN A 11 WEEK PERIOD. I truly believe that those little "red patches" found in a cysto at week "one" were really a reoccurence and the uro just plain missed it by not doing a biopsy.
I am a caregiver to my wonderful husband, Ron
10/04 Multiple T1G3 - TURBT & 3 yrs BCG -
9/08 Invasive BLC w/distant mets
11/08 - 3/09 Gemzar/Cisplatin chemo regimen
4/09 Radiation to bone mets
6/09 lung and liver met progression - start ITP chemo
10/09 My darling Ron passed away