Hi Leigh..My name is Ed and this is my first post.I guess you can say I've been a "lurker" on various sites jsince april/09 when my world changed and was diagnosed with BLC. I have since had 3 turbts..one 6 weeker of BCG and sit here terrified with a T1-G3. Although I am absolutely humbled by what I have read on this site it doesn't stop me from being quite concerned. I have read many of your previous posts and feel for your tender situation. I sure hope that you can continue on with your easy to read info.
The first post that I remember reading about the neobladder was yours. My Surgeon in Toronto,Ontario whom I totally trust is sending me off to Sunnybrook hospital for a second opinion. That apointment is tomorrow oct/23 and as hard as it is I'm preparing myself for what I'm expecting will be a recommendation for a RC. I guess the reason I chose your post to reply to is the fact that your choice was a neobladder and have been inspired with your comments about how well you seem to be handling it all.
Thank you for writing! My thanks for this site does certainly not limit itself to you only but as well as all the people who have helped you.
I'm a very happy positive man with lots to live for and have a funny feeling this site will end up being a very important aspect of my "happy" life. I will end this post with a very simple but large thank you and to all those like you...wish me luck. Ed
