There are three stories going on in this post.
And that is the case with this frigging diesase.
I am so sorry to hear your story graymare. I cannot imagine having to live with the time bomb inside and no way to fight it. I cannot express my sorrow for your situation. My heart goes out to you. Please live the time you have, with grace and happiness.
Lorraine, You are why we are here. We ALL have times that we feel very sorry for our lot in life. It is really OK to "get down" about this disease. We are here to listen and to let you know that you are not alone with your emotions. There is no weakness in being emotional when they say "cancer" and as you recover and have a lot of time to think, things begin to weigh on you. Feeling depressed is normal.
We are here to cajole, talk and to kick you in the ass if need be! We want you to get better and become a true survivor. You may stay and share your experience with others, or you may drift away to your real life.... We just want you to have a GOOD life. I am glad you came here and responded to another post and tried to help. You Go Girl!
EMC
Thanks for starting this post.
This is the place to share your story with us. Share your fears with us. Ask questions of us. This is the place to let it ALL hang out! There is nothing, and I mean NOTHING that is Verboten. If it concerns you.........it concerns us.
Like you, I came to this site after I had been through 2 TURBs and a Radical Cystectomy and a neo bladder (nerve Sparing) I came here and meekly asked my concern;
"Am I going to die from bladder cancer?" I was sure that this was just the beginning of a long battle. I was afraid to ask this of the Dr. with my wife in the room.
Well. I got an answer back real quick. Some smartass on this site responded;
"You will not die of bladder cancer. You might die from being hit by a bus! You have no bladder, so you will not die of bladder cancer." Smartass!
I also had nerve sparing surgery, and it was almost a year before I could work up a minor erection. It was 3 years before I could call upon myself to "perform"
Thank you all for posting here. The emotions spoken here are exactly like the emotions of this disease. No story is perfect. There is lots of heartbreak and setback in this journey. Please keep coming back. You may really help someone who never post's here, but needs you help.
Thank you all for being here
George Kline