Hi, I’m new to the forum. Some thoughts..

Hey Opaz,

My command of thoughts is sometimes fuzzy when I put them into print! What i was trying to say was many, maybe a majority of people are never able to complete their protocol and maintenance schedule. By the fact you have done many treatments, you likely are protected very well and simply won't need anymore.

On the second question. Yes, you can damage your bladder. I know a couple of people that have that problem with severe bladder cystitis. I have no clue how to measure what is too much and whether one installation can put you over the top to damage. I as mentioned, many people reduce their dosage, and it appears with no loss of efficacy (effectiveness). You are asking the right questions, and it is obvious you are listening to your body. All good things.

I believe most people had good outcomes at a lesser dosage. I also add from memory (there may be data or studies to confirm or refute  my next statement) that those that at least started maintenance beyond the first 6 in the induction phase, for the most part have had good results. Everyone is different and our bodies are all different. When the cure becomes worse than the disease, one must reassess what they are doing. This I do know, the majority that do BCG and have some follow up, hang on to the bladder. I have learned cancer is an inexact science.

Welcome Opaz,

Your side effects are pretty normal, especially as you are quite away down the road in your regimen. Two observations. Nothing says you have to finish every dose in your protocol to be cured. Many have taken further treatment with lower strengths such as 1/2, 1/4, even 1/10 when they become almost unbearable. You don't want to make destroy the bladder either. Also, remind yourself that systemic chemo for most is a lot worse than what BCG presents.'

Good luck and post away as you have further questions.