Newly diagnosed Turbd upcoming

Welcome to a place you didn't want to be!  A LOT of us have been where you are.,

First (and this is the hard part) try not to freak out.  If your urologist is correct, and she has had a lot of experience with cases such as yours, you will have the best bladder cancer diagnosis there is.  If she is NOT correct, and it is high grade, that is probably the second best diagnosis and it can be very successfully treated.  However, you will not have a definitive diagnosis until the tumor is removed and examined by a pathologist.

If the tumor is indeed low grade non-invasive, or even high grade non-invasive there is very little chance of it spreading to other organs.    But bladder cancer does have a nasty little habit of returning, which is why the every-three-month exams are part of the standard of care for non-invasive bladder cancer.  It sounds as if your urologist is "right on" with treatment recommendations at this point.

When to get a second opinion?  Any time you have a complicated or unusual diagnosis, any time you feel that your current urologist is NOT following current standard of care practices, any time that you feel really uncomfortable with your treatment plan.  When I was diagnosed I checked around with other doctors and found that everything was being done that should be (as is your current situation).  My urologist told me that if it ever came to the point where he felt I would need radical cystectomy (bladder removal) he would INSIST that I get a second opinion.  Fortunately, it has never come to that.

Just a quick word about urine cytology....it would be expected that it might show malignant cells at this time.

In summary, you appear to have a highly treatable case.  You are very fortunate to have been referred to a urologist immediately;  often in the case of women bleeding is ignored.  Be sure to ask your urologist any questions you have, such as the one about any additional tests.  And there are many of us here on the Forum who  have been there/done that who can share experiences with you.

Best of luck and please keep us informed as to how you are doing!!

Sara Anne