Danelle,
I had a lot of bladder pain after my first TURB. I even had quite a bit after my first cystscopy that discovered my 1.7x1.5x2.0cm LG/Non invasive BC Tumor (3 days prior to my TURB is how my story worked, but everyones is different - my young age they thought it was kidney stones at first due to a vascular phebolith that to this day could fool most radiologists into thinking it to be a kidney stone due to it's size and proximity to the distal left ureter.
Anyways my first TURB required stents for a month and catheter at home for a week. I had pain that whole time that was AWFUL, especially bladder and lower back for 3-7 days that had heavy bleeding and deep esepcially lower back pain. Then after stent removal I started to have terrible and worry some ureter pain that felt like passing a kidney stone. They did some more US scans and CT scans and found my lung bases all the way to my pelvis to be unremarkable and normal.
Anyways, I got back on alprazolam after that, and that took care of the ureter pain and the bladder pain once and for all.
I just had my first exploratory cystoscopy last month (4 months after my first TURB) and I didn't even have needle pain on my "first pee" after that scoping.
Then almost two weeks ago I had my second TURB, and it had been virtually pain free.
I, too, have nerve issues both caused by a massive (5"x3"x2" lipoma) located along R.H. Buttox where one of the sciatic nerves had grown into. That lead to a long term buprenorphine and alprazolam prescription for pain management.
I quit the alprazolam completely 3 days prior to my first instance of HEAVY hematuria. And stayed off until the ureter pain I was talking about became unbearable. Now I am prescribed it again.
ANYWAY, my point is not to get on xanax or any narcotic for your pain or any other pain that is not the solution. My point is that EVERYONE is different, and it can totally be mental, nerve, and physiological that can cause and contribute to pains that can be different for EVERYONE.
If you have any questions for me just ask me!
My surgery report never mentions anything like Chemo, BCG or Interfon flushed into my bladder after my first (or second TURB). if I remember, I'm going to ask my URO on tomorrow's pathology visit for this second TURB if he flushed my bladder with anything after either of these TURB's or not.
Anyways..good luck...sorry you, too, had to "join the club" and I pray and hope the best for you and KNOW this will work out for you and should only get better from here