Hi Gay,
I know how you feel...well no i don't..I know how i felt when i was diagnosed..something akin to what George said. Just read an article that the North East in the UK has the best Cancer outcomes
www.journallive.co.uk/north-east-news/todays-news/2011/04/22/survey-reveals-cancer-patients-in-north-east-have-best-hospital-experience-61634-28564094/
Bladder cancer very specific and your consult should refer you to one of the top hospitals that really specialize in the field. And they know which ones they are. I wish i were more familiar with the UK but we've had many from there who have been treated at The Royal Marsden, The Christie, and my mind just went blank on the 3rd.
I'm a bit concerned as to why the pathology did not seem to specify stage? I mean its either into the muscle or its not and if the surgeon got a good enough sample down to the muscle they would know if it were T1 or T2. Protocol here in the states is to have a second TURB (which i'm assuming you had) within 2 to 6 weeks after the first. This is usually a second opinion with a highly specialized surgeon and will determine if all the original tumor was removed and margins clean. Please try to get with the best consultant that you can...pull whatever strings possible.
I am almost 9 yrs out with T2 invasive bladder cancer and i had a top surgeon perform the radical cystectomy. I have what is called an Indiana Pouch with a naval stoma and i catherize about 4 times a day. Its easy and no leakage once it is trained.
But thats all stuff to ask about once you find the right surgeon and determine where you are as treatment could vary if T1G3.
Wishing you the best.
pat