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Does anyone take Metformin?

3 months 3 weeks ago #57155 by Cynthia
SJHatch, You did nothing wrong please do not be upset as Crusher said my response had nothing to do with your originals post.
I was diognoised at 48 with invasive disease. At that moment in life I knew nothing about bladder cancer and was terrifiedd with no one to talk to and little information available. From that experience the ABLCS was born, I promised myself that if I lived I would find a way that others would not have that to deal with on top of a bladder cancer diagnosis. So if anyone understands your need to share with others and the need to talk to others going though the same thing you are, I do. Please do not let this chase you away this site needs people like you willing to share and be there for others. Our job is to make sure this is a safe space for survivors and the people that care about them can come and share, if we have made you feel that is not the case I can only hope you will give us another chance.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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3 months 3 weeks ago #57149 by Crusher
Dear SJHatch2024;
You have absolutely no reason to be sorry, it was my "thinking out loud" that caused the stir. I agree with your sentiments about finding comfort from others that have been through this experience, that is exactly why I am here.

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3 months 3 weeks ago #57148 by Crusher
Thanks for your response - I assure you that I am not an attorney looking for clients, I am a shell shocked NMIBC patient feeling my way through this new jungle. You response does not come off as defensive, just setting me straight, answering my questions and telling it like it is. That is why I ask the questions and if my verbiage makes anyone defensive it is not intended that way, just my "thinking out loud" mode. I also am a founder and active director of a Not-for-Profit organization and have nothing but respect for the time and effort involved in what you do, thank you for that! I have found this forum very helpful and have spent approx.. 8 hours simply reading hundreds of posts and striving to gain a better understanding of my situation. Thank you.

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3 months 3 weeks ago #57147 by sjhatch2024
My question was only, "Does anyone take Metformin?" I asked because I saw an article in a magazine and wanted to know opinions of fellow bladder cancer patients. I never intended in any way to suggest Metformin should not be used. I come here to hear other peoples stories, offer some support if I can and in general just learn about this cancer. I have had it since 2014 and there is really not many people close to me that I can talk to about it. I am very sorry for the controversy caused by it. Thank you.

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3 months 3 weeks ago - 3 months 3 weeks ago #57136 by Cynthia
Well Crusher send me your address and I will be there with the TP. I started the ABLCS and I am the President of this organization. We have a policy not to work with the pharmaceutical companies as lucrative as that is for many nonprofits. We keep the doors open through individual contributions and we are all volunteers here including myself and none of us are in anyway are enriched by our work here as a matter of fact the opposite is true. I have never taken nor I believe any of our moderators taken Metfomin, you will find that we jump in when we need to and when a thread it going alone not needing our help we leave it alone if we have nothing to add of value we don’t. The Metformin issue is a know one and if you do a search of our forum you will find it has been in other posts. If you feel that your have been harmed by taking Metformin you might talk to a lawyer and see what your options are. But we are not lawyers here anymore than anyone here is a doctor what you find on this forum is to enable you to find support and to have better informed conversation with your medical team.
The only time we delete or edit a post is if it is abusive or spammers that what your money and mine for quick cures and various other schemes. So you are free to talk about Metformin all you like, but if you are a lawyer looking for people to join a lawsuit this is not the place for it. I know I may have come across as defensive but if you only knew how hard we all work to keep this forum the place that I hope is a safe envirment to talk about bladder cancer and the ramifications of it. I know that conspiracy theories are very popular right now but you are going to have to look for one someplace else.

Welcome to our forum I hope you are finding it helpful.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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3 months 3 weeks ago - 3 months 3 weeks ago #57135 by Regor
I too have been on Metformin for > 15 years, 1000 mg twice a day (the max). It should be noted that I also smoked heavily up until 25 years ago, and also worked in Industry that included chemical interaction that could have contributed to my BC.

CIS DX Jan 2019

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