Dear Sol,
I've been reading your posts and thinking about you...I'm in a similar position - 49 years old and diagnosed in Aug 07 with T1G3 tumors (no CIS) and I've had 2 fast recurrances during the fall...I didn't even really get time to have BCG, although I did have one course of Mitomycin C after my last TURBT (I've had 3 TURBTs). I could opt for BCG right now (and my doctor would put me on the 6 sessions now and every three months - 3 sessions for 3 years), but if I have one recurrance on BCG, my doctor has said that it would be time for radical cystectomy (RC) surgery. This has been the most agonizing month of my life, but I have decided upon the surgery, which is scheduled for Jan 18. I have done a lot of research and I have a file of many of the articles I have read and if you'd like me to send you that file, I will gladly do so. Dan, another member of the forum, sent me an article called "Early Indications for RC" which I could also send you. I conctacted Dr. Lamm as well, and I'll send you his response to me too, if you like.
Every morning for the past month I have come down to my computer hoping for another answer. As Ross said in one of the posts, the worst thing about this disease is that it's a gamble. I will never know if I could have been sucessful in sparing my bladder. If I were to chose the treatment right now I would always be scared that it is progressing even while on the treatment. We are really between a rock and a hard place. Over the fall I have been exercising and eating really well and trying to be as physically and mentally strong for this surgery as I can be. So many people here are helpful. You can go onto my profile on this site and send me a personal message with your e-mail address and I'll send you my info file if you think it would be helpful to you.
Warm wishes, Marie