Got home this evening. Actually, it is amazing in a way, my surgeon had told me a week to 10 days and that was when he was assuming 7 hr operation with little or no Intesive Care. The operation was so long followed by a couple of days in Intensive care and he told me again that I could have gone home last night in his opinion (we wanted to be a little more healed).
He again told me that I am coming along very quickly.
So right now, I have four tubes. Lower site is a foley catheter (fun fun fun) and the upper site has a collection of 2 ureter stents and a tube to the neobladder. They are draining through an ostomy pouch into a larger tube. So, externally, its two tubes.
One problem with the upper site is that it was positioned for access to the neo and ureters, NOT for optimal ostomy positioning. Therefore, keeping the wafer going is a bit of an issue and over the past few days had a lot of changes, even by the ostomy nurse. Thankfully, that is only for a few days as the doctor is planning to remove the stents next week, leaving only the tube to the neobladder. That will take away the need for the ostomy connection and just connect to the foley's tube and only one bag.
Actually I have not had much site pain, just the gas and pressure pains. One strange one was that I am a CPAP (air mask) user when sleeping and was told to bring it to the hosp. We tried it about four days after the operation once the nasogastric tube came out and I had it on for about three hours before the pressure it added to my system (through the stomach) had me in a lot of pain. Off it came and stayed that way for the rest of my time in the hosp. Not sure whether or not to try it again tonight or just wait a couple more nights.