Still sounds like another opinion from a major bladder cancer center is in order.
Low grade can certainly progress enough over time to the point that the bladder should come out. But unless the grade has changed, and as long as it has all be T0, then it seems like maybe bcg/interferon blend or some mitomycin instillations or something <em>could</em> be tried before doing an radical cystectomy. Note I said "could" not "should". I really think it is worth following up with a 2nd opinion.
I know my statements above may shock some who've seen me harping on highly aggressive treatment over the years, but with "low grade" I am of a different mind set.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...