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BCG side effects and bicycle riding

3 days 5 hours ago - 3 days 5 hours ago #58025 by NelsJenn
Dear Swarmy2007,

My warm wishes goes out to you. The whole process has been exhaustive for me, so I am at awe with your fight. Like Alan, please know we are at your corner with an ear of understanding and support.

Warm regards, Nelson

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1 week 5 days ago #57966 by Alan
swarmy2007,

That is brutal! We will still listen and have our ears for you. We care!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: swarmy2007

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1 week 6 days ago #57964 by swarmy2007
Thanks for reply Alan but I should clear my situation up a bit. I am 68 with severe spinal cord injuries and walking is barley capable without assist for years. Had couple heart attacks,, thyroid cancer, mid grade Barrett's dysplasia and a massive emergency gastric surgery.... all within last 8 years so my days of exercising are sadly low key now. I do feel overwhelmed all this now and seems the BCG failure was like my final hope. My Urologist that was doing Turbts & BCG 3 times over 2 years sent me to Oncologist at a training school here for said out of his league. Wait 8 hours past appointments to see Big Kahuna doctor and he see me 10 minutes then rushes off to next in line. I am losing faith in the whole process and thinking maybe just stop the train and put all in God's hands and not drag this out. Been fighting 1 mortal thing or other too many years now and this has really taken me down.

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1 week 6 days ago #57961 by Alan
"Alan, what is your take on Gemzar intravesical in bladder 6 weeks after 2 & 1/2 full 6 week treatments BCG failed T1-G3? Had 1 Gemzar and wondering if just a waste of time. Thanks"

To me it is a worthwhile try. That said you don't want to go too long without results when having 2 prior groups of BCG failure. I presume your medical team are all on board?

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: swarmy2007

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1 week 6 days ago #57960 by mojodoggy
I’m on my 5th week on BCG and so far I’m back to lite CrossFit and I ride twice a week. 1mountain and 1 road. I do use a nice saddle that relieves pressure on the tender area, it’s called an ISM (split saddle.) I use it on both bikes. It’s sooo comfy! The only side effect so far has been some fatigue, but you gotta force yourself to stay in shape!
Denny

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1 week 6 days ago - 1 week 6 days ago #57957 by swarmy2007
Alan, what is your take on Gemzar intravesical in bladder 6 weeks after 2 & 1/2 full 6 week treatments BCG failed T1-G3? Had 1 Gemzar and wondering if just a waste of time. Thanks

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