Three Month Cystoscopy

6 years 9 months ago #53677 by Mistersac
Replied by Mistersac on topic Three Month Cystoscopy
Sara Anne,

Your reply that odds are I would be clean, can this be calculated based on an initial clean biopsy after BCG, and not visible symptoms since. CIS is reported to be responsive to BCG, and the initial clean biopsy seemed to indicate that. Also is a cystoscopy just 3 months later a fair timeline to get a measurement of result?
,

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6 years 10 months ago #53615 by sara.anne
Replied by sara.anne on topic Three Month Cystoscopy
As someone who also had non-invasive CIS I can relate to your anxieties! First, the odds are that you will be clear.
Can't help worrying, I know...I still worry and I am now almost 9 years out and on yearly checks. Am fine most of the time UNTIL that exam time starts rolling around.

As Alan said, assuming you are clear, most urologists would start you on three-month maintenance BCG treatments. These have been shown to increase the effectiveness of BCG PARTICULARLY with CIS. Hope this is what your
uro does. And, also as Alan mentioned, if it is still there another course of BCG (6) is sometimes used and if it persists there are other options, such as BCG with interferon.

Wishing you a great exam!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 years 10 months ago - 6 years 10 months ago #53613 by Alan
Replied by Alan on topic Three Month Cystoscopy
Odds are with you the BCG has worked. Most but not all protocols will have you on 3 month cycle of BCG then cystoscope for a couple of years graduation to 6 months then a year. IF the BCG hasn't worked normally it is tried again sometimes with interfuron as a booster. I have learned on anything, especially medical, one day at a time! That is all we can control

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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6 years 10 months ago #53612 by Mistersac
Three Month Cystoscopy was created by Mistersac
My 3 month cystoscopy is scheduled for July 5th. My initial diagnosis was non invasive CIS, and I went through 6 BCG treatments, had a biopsy that was clean. I have not experienced any negative symptoms, i.e. bleeding or burning, and continue to exercise and stay fit. However as I approach my cystoscopy that will be done in my Uro's office I am hopeful that it will continue to be clean, but need to prepare if it is not. If it is not would I be put on 6 more BCG treatments? If it is clean would I be put on 3 maintenance BCG treatments. What is the likely hood of a good result given the clean result after the initial biopsy post BCG?

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