HI. I am a 36 yo man, T1-G3 with CIS/LVI who underwent RC and ileal neobladder formation just about 1 year ago (1 year old on 6th November). On the whole things have been okay - early daytime continence and only 1 or 2 UTI's. I have been undergoing regular surveillance and have just had a set of tests (urine cytology, CT-urogram/pelvis/abdomen, CXR) which were all negative. Just afterwards I noticed a few specks of blood in the mucus, on one occassion. Then 3 weeks later, last week, I noticed one episode of more red blood (only in the mucus). Repeat cytology was negative for malignant cells, urine microscopy was positive for a low level of pseudomonas (again, which I had before), but without any other infection symptoms. I had a cystoscopy, which showed normal urethra and neobladder. I have had no more episodes of red blood, but have had a further episode today of seeing 3 specks of dark blood in the mucus.
Does anybody else who has had a neobladder see this kind of thing, just in the mucus?
I have spent a long time searching for answers on the web but can't find anything. My surgeon, feels that this is probably related to my high level of activity (I spent 2 hours mountain biking today with my marathon running buddy!!). Obviously I am quite worried, in particular about the possibility of ureteral recurrence.