Hello,
My Dad had his neobladder surgery on the 17th of July. he did great during surgery. He ate liquid diet for one day in the hospital and then they started him on a soft mechanical diet the day after. Then he went home.
He didn't have an appetite. Liquid and food was an effort as he was not hungry and felt nauseus after eating. My mom called the nurse a few times and they said to eat small meals and to make sure he drank enough. Well, drinking made him nauseus and he couldn't eat or drink anything much or he would fill up.
Two weeks of this he had a blood test and was found to have a dangerously high level of potassium and was admitted to ER. They rehydrated him and got his bowels moving. Pretty much cleaned him out and got those fluids in him. It was a long couple of days, but he got his appetite back and has been doing good ever since.
He had been sent home with a prescription for Colace, but didn't take it because he was having loose stools. We now believe he should have been taking the Colace right away to get his intestines moving.
During the hard two weeks with not much eating or drinking I found a website that lists foods to eat and to not eat post-op intestinal resection with diarrhea. Maybe this can help others. Here is the link:
www.surgery.upmc.edu/farkas/Residents/Orders/Diets%20for%20post.htm
My Dad is now working on plugging the suprapubic catheter and increasing urine flow via his penis and enlarging the neobladder. Things are progressing and I have found information on the web to help out. How is your husband progressing in this area? I would love to hear any information that might help my Dad keep dry and increase the penis urine discharge.
Glad your husband is doing better!
Karen E - California