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Just diagnosed with Small cell bladder cancer

1 year 11 months ago #55258 by SandieLegal
My thoughts and prayers are with you! I’m sure your outcome will be as good as mine is and has been
Sandie

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1 year 11 months ago - 1 year 11 months ago #55248 by Whitneyvet
Hi - Whitneyvet here. I was diagnosed w/ SCBC two weeks ago and began my Cisplatin and Etoposide chemo today - a 6.5 hour day consistently mostly of hydration and anti-nausea meds plus the chemo. l am under the care of UCSD Urology team on oncologists and surgeons. Looking at 4-6 cycles of 3 days chemo plus 18 days rest.

(sorry posting personal contact information is against our terms of service for personal security concerns)

Wishing us both all the best as we begin this rocky road to long-term survival.

Whitneyvet sends

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1 year 11 months ago #55153 by cpl3800
Thank you for the reply. My first visit to the Oncologist is today at Kaiser in Orange County, Ca and I have scheduled a second opinion at UCLA on Thursday. From what I have been reading online, the treatment will be two types of Chemo followed by Radiation and or radical removal of the bladder, etc. Your email gives me hope that there is life after this diagnosis!

Thank You Again!
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1 year 11 months ago #55151 by SandieLegal
59 year old female here! Pure small Cell Carcinoma of the Bladder (sccb)
I am 29 months post treatment and Loving Life!
I had the tumor removed T3 by the urologist who removed it..... T2 by the Oncologist Radiologist.
My Treatment was Done in Fargo Noth Dakota at the Roger Maris Cancer Center and my Doctor had just relocated from the Mayo Clinic! 30 radiation treatments and 5 (3day long) Chemos.
I keep my Bladder, and it works perfect just like before!
I had the Classic Hematuria was my only indication!
It will be 3 years On Thanksgiving 2018
You can Live through Small Cell Bladder Cancer

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1 year 11 months ago #55106 by sara.anne
When you are diagnosed with something that is relatively rare you really need to seek out a cancer center that specializes in uncommon and difficult cases. They have experience that other places just do not have. These would include, for example, MD Anderson, Memorial Sloan Kettering, Stanford, and Johns Hopkins, among others.
You might also want to contact Dr. P.K Agarwal at the National Cancer Institute Center for Cancer Research
(This email address is being protected from spambots. You need JavaScript enabled to view it.) who can give you information about treatment trials at NCI as well as who else might be at the top in expertise in small cell bladder cancer.

Best to you

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 11 months ago #55105 by cpl3800
I was diagnosed this week with SCBC and had a PET, Cat scan, and MRI on the brain Wednesday. My first meeting with the Oncologist is next Tuesday. I am / (was) a healthy 67 year old man who is working and still stunned by what I read. Is sounds like this a death sentence? How do I make a decision on the correct Hospital/ Doctor because there does not seem to be much help out there on who is the most experienced. I has the TURBT procedure and the Pathology came back with the bad news which surprised my Doctor as well. I just found this site and look forward to any suggestions on how to move forward.
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