For the past year I have been having copious diurnal,and nocturnal enuresis requiring diapers. I am only 39, and I have had several MRI's and Cysto's that have shown nothing. In June, I had a positive FISH test for 4 cells showing polysomy, however my urologist dismissed the results, as my cytology was negative. I have recently been experiencing instances of micro hematuria, and small black fibers in my voided urine, in addition to bilateral bone pain in both of my legs, (whereby the non contrast leg MRI was negative). I just had a CT urogram with contrast which indicated the following: The mid and distal right ureter are not visualized. There is a punctate focus of enhancement in the right renal cortex (0.1 cm) (believed to be a possible angiomyolipoma), and thickening of the anterior superior bladder wall on the delayed images is at the upper limits of normal (3 mm). Otherwise, the bladder is normal. Mild prostatic hypertrophy and calcification. I know that "we" are not Doctors, however what are the thoughts here? I just had a cysto in September that was "normal", could a cancer grow by January to cause focal wall thickening? Is OAB causing this problem? My uro wants to schedule a blue light cysto, however he cannot see me until March. In a worst case scenario if a Cystectomy was performed, would it be possible to attach the ureters to the urethra and render me incontinent? Personally I find that diapers, or a condom cath would be easier that a stoma, bag, or indwelling catheters.
Thanks,
Kjay