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Just Received the basic news

3 years 5 months ago #51372 by Henriz
I do understand how everyone is different. I do hope you are successful in finding a workable solution.
Henri

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3 years 5 months ago - 3 years 5 months ago #51371 by Mclabhran57
I am happy that your experience went somewhat smoothly for you, but as you know, we don't all have the same experience with BCG treatments. Although my biopsy was clear (thank goodness), my result showed chronic inflammation of the bladder (blisters). The last series of BCG treatment was hard and very painful and always inflammation. Obviously, my bladder cannot tolerate BCG treatments anymore. Now I am trying to find ways to heal the bladder.
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3 years 8 months ago #50902 by LillianG
Henri, Happy Easter!

Thanks for the update. I've been wondering how you were doing, and it sounds like you are doing well. This is fantastic news!! You are a real trooper and an inspiration!

Please keep us posted and take care,

LilyG

5/2015 4x2cm HG Ta Papillary TCC; 6 initial BCG followed by 3 sets of BCG maintenance. Ten scopes - all NED. Now at scope 1x year.
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3 years 8 months ago #50901 by sara.anne
Henri, you are a role model for all of us. So glad that things have stabilized....this will give you and your docs some breathing room to figure out the next plan of attack!!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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3 years 8 months ago #50900 by Henriz
Hi everyone,
I wanted to check back in. I didn't realize that I hadn't stopped in after my January 4 CT Scan. The CT Scan was wonderful. All areas of cancer were reduced up to 75%. So, I am thrilled.

I did undergo three more rounds of chemo and just returned last week from another CT Scan an checkup. There was no change in the cancer areas and everything is stable. I am told this is good news. Of course, I was hoping for further reductions, so it didn't seem like good news to me, but I am so thankful and blessed that the cancer has stopped growing. The doctor ordered three more rounds of chemo and then a follow-up CT Scan after that.

I still have the fistula in my bladder and the MDA doctor told me in no uncertain terms that I cannot have the bladder repaired so I have to look at alternatives to sewing up the bladder like I wanted to. So, I guess I have to consider a urostemy or some other alternative. I have an appointment with my new Urologist on Monday to discuss alternatives with him.

I have an addition problem with my blood pressure. The chemo meds have increased my blood pressure and my primary care physician cannot seem to get it lowered. I have an appointment next Tuesday with cardiologist to see what he has o say.

So, right now, it seems all my social life is made up of trips to the physicians or labs. But life is wonderful and I am not complaining. I am still hopeful that I can beat this cancer. I know it is a long shot, but I'm working on it.

I hope all of you are doing good and I wish each and every one of you that celebrate Easter, a very happy and blessed Easter.

Henri
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3 years 11 months ago #50248 by Rockyiss
Hi Henri, I am glad you are holding your own and I am hoping the news you hear will be all good. My husband and I have both battled cancer and know how nerve wracking it can be when it comes time for the scans ! Good wishes and blessings are being sent your way. Rocky
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