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Husband having bladder removed

5 years 1 week ago #48522 by Alan
Amandah,

The other posters are certainly pointing you in the right direction. A second opinion is also a very good choice. As it does look like a cystectomy is probable here is a very good write of options: http://my.clevelandclinic.org/health/treatments_and_procedures/hic_Urinary_Reconstruction_and_Diversion

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 years 1 week ago #48517 by Theoks
My husband is currently being treated at UCSF and I highly recommend their team . They are thorough open to questions and feedback and very patient focused
Please get a second opinion before taking this major step

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5 years 1 week ago #48516 by raider
I live in the bay area and I'm not at the point of bladder removal but have had the conversations with my urologist on what we would do. I'm 53 years old and healthy and in good shape so I would choose the neobladder, my urologist performs these but he did say he would send me to Stanford if we end up having to do it since they do this much more then him.

Best wishes to your husband!

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5 years 1 week ago #48514 by sara.anne
Amanda, co sorry to hear this. I would assume that the urologist send the tissue specimens for pathology, which is the only way to be sure exactly what the situation is.

And a second opinion is DEFINITELY called for. I have not been in that position, but my urologist told me when we started our journey together that IF it ever came to bladder removal, he would REQUIRE that I get a second opinion!

You have two excellent choices nearby. Stanford is, of course, top notch and UCSF would be a good second choice. When considering cystectomy (bladder removal) there are a lot of decisions to be made. There are three general types of diversion and there are options for before/after surgery treatment also. It is very important that your husband be aware of all of these before he makes a decision. He also wants to be treated at a center that does LOTS of these surgeries and has LOTS of experience in this area. It is NOT necessarily routine.

Wishing you the best of luck

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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5 years 1 week ago #48512 by MHY
My bad. Google "Johns Hopkins pathology patient second opinion".

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5 years 1 week ago #48511 by MHY
I recently sent my slides to Johns Hopkins for a second opinion. Unfortunately, I don't have the web address (I am using my smartphone), but you could Google Johns Hopkins urology second opinion to see if you locate their webpage. Cautionary note, the paperwork is a bit daunting.

Good luck.

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