recurrence of superficial tcc

9 years 5 months ago #47327 by Whatnext
Replied by Whatnext on topic recurrence of superficial tcc
Hello,
I am new to this forum and have had multiple TURBT procedures for recurrent bladder ca, despite BCG treatment. I just had my seventh TURBT and a stent was placed in my ureter. My fear is that the cancer has spread to my ureter, and I'm wondering how common this might be. Also the stent has caused much discomfort and the plan is to repeat cystoscopy next week and remove or replace the stent. Not sure what will happen next week, but the last 6 weeks have been very trying. I care for 2 adopted grandchildren and having so many recurrences is a bit frightening!
Any thoughts or experiences are most welcome!

Please Log in or Create an account to join the conversation.

9 years 5 months ago #47295 by Flamenco.
Replied by Flamenco. on topic recurrence of superficial tcc
I think a lot of statistics on any type of cancer are confusing and can be misleading. I was also told there was a 70% chance of the cancer returning, but that doesn·t necessarily mean it will become invasive. Superficial bladder cancer has a high rate of recurrance, but with treatment and regular checks, it also has a high rate of survival. The most important thing now is to have a TURB, a procedure where the mass is removed, and examined to determine firstly, if it is a tumour, its grade (how agressive , or not , it could be)and stage ( whether it is confined to the inner surface of the bladder, or if it has penetrated deeper into the tissue). Quite often, following this procedure , a dose of chemotherapy is placed in the bladder, to catch any stray cells in the area. Once you have a diagnosis, your doctor will advise on whether any further treatment or operation is required. Please keep in touch with us when you have your results, but do not stress out too much on the statistics, the good thing is that something has been picked up on your scan and probably at an earlier stage than if you did not know about it until there were symptoms.
Diane

Please Log in or Create an account to join the conversation.

9 years 5 months ago #47288 by fighterm
recurrence of superficial tcc was created by fighterm
I am in treatment now for Non Hodgkin's lymphoma, and my treatment works, my midway scan showed significant clearance of lymphoid masses. However, a small mass in the bladder looks suspicious for tcc. I was told that it most likely superficial, non invasive etc. But then I read that 70% return in 3 years and they usually invasive. I don't understand this statement. Is it 70% of all superficial tccs return or is it 70% of all returned tccs return in 3 years.

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne