I can tell that you have been doing your homework.
UTI's, per se, are not a sign of recurrance, however, blood in the Urine is a sign of recurrance. How do you know that what you have is actually a UTI?
Have you had urine cultures done at the Urologists office?
I do not understand the idea of not getting a muscle biopsy with a T1 diagnosis. Are you sure about this?.... Did the Doctor tell you this, or are you determining this by a pathology report? I have concluded by my own path reports that the reading of the muscle pathology is in some sort of secret code, cause you can't prove there is muscle specimen by what I can read. The Top Doctor assured me that he got it!
Until the time you can get a second opinion, become as proactive as possible for your own advocacy without stepping on your Doctors toes (This is sometimes a fine tap dance:P). Ask him if you can have an NMP22 urine cytology test.
Get the culture for UTI, get an NMP22, and if everything is clean, try taking Cranberry pills to clear up the UTI's (you can find AZO at any drug store.)
I wouldn't take cranberry while taking an antibiotic, though.
ASAP, get a second opinion. Isn't there another Doctor at the same clinic that you can use?
Ro