Help with Bladder Cis

5 years 1 month ago #57045 by Fhern01
Replied by Fhern01 on topic Help with Bladder Cis
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5 years 1 month ago - 5 years 1 month ago #57037 by Jack R
Replied by Jack R on topic Help with Bladder Cis

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
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5 years 1 month ago #57035 by Fhern01
Help with Bladder Cis was created by Fhern01
5 years ago I went to 2 urologist for symptoms of frequency and urgency every 2 hours. 2 cytologies came back negative from both urologists, fish test 1 postive and 2 one done came back negative (urologist said 1 was false positive) and negative cystocopies. After 5 years I still have the same symptoms, however, symptoms have not gotten worse but the same. I fear that CIS may have been missed. Could anyone give me their opininon if I have had enough workup to rule out Cis. Would my symptoms have gotten worse throughout the years. I spent so much money 5 years ago on tests and procedures with no answers and just trying to figure out if I should go through it all again.

Many Thanks

Frank

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