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Here we go - CIS & BCG

5 months 2 weeks ago #56761 by sara.anne
CYSTITIS CYSTICA is not an uncommon finding along with bladder cancer. It is sort of a vague condition of irritation, probably as a result of the cancer, and is not really of any concern. It is sort of like having an insect bite and the skin around it sort of getting irritated also. It was also part of my path diagnosis and we never even really talked about it. The CIS was the critical part and BCG fixed that!!

And with all due respect to your urologist, CIS is NOT pre-cancerous. It is, as you have read, one of the more dangerous forms of bladder cancer if left untreated.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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5 months 2 weeks ago #56760 by Alan
Regor,

You are certainly asking the right questions! At the same time and, I don't mean to sound flippant, I have also learned that I must trust the team I chose and simply forge ahead. With CIS you know you will be getting BCG. At the same time I would be asking your doc about extra irritation in cystitis should the BCG make thing worse or, he may be saying that the CIS causes it. I don't know. He is in charge.

Keep posting away. I have been traveling for a week and just catching up with posts.

The positive note is you should be on your way to looking back in 6 months and say this wasn't too bad. There are ALWAYS people in worse condition!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 months 2 weeks ago #56759 by Regor
Thanks Anne.

It's very confusing for the laymen. We all read so much, and talk to our Doctors, read posts.
My Urologist has referred to my CIS as pre-cancerous, but in the same sentence will say I have Bladder Cancer.

I understand CIS (as it's own Stage (Tis) and the High Grade and urgency to get to my BCG, what I am really struggling with is the CYSTITIS as also found in my Pathology report. The Web has not been friendly to help me, and even searching here doesn't bring up a lot of past posts.

FINAL PATHOLOGIC DIAGNOSIS
A. Bladder, left lateral neck, biopsy
- FOLLICULAR CYSTITIS WITH CYSTITIS CYSTICA


B. Bladder, left posterior neck, biopsy
- UROTHELIAL CARCINOMA IN SITU
- BACKGROUND OF FOLLICULAR CYSTITIS

CIS DX Jan 2019

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5 months 2 weeks ago #56724 by sara.anne
Regor, I need to comment on your readings about CIS.

There is CIS and CIS. In some cases, particularly breast cancer where it is getting all the attention, something called "CIS" is indeed pre-cancer or maybe not cancer at all. There has been a lot of brough-ha-ha in the press about the "controversy" since most breast cancer surgeons seem to be recommending no treatment at all.

CIS in bladder cancer is totally different. It is a variant of uretheal carcinoma (the one that appears as little "mushrooms" growing up from the bladder surface.) Carcinoma in situ in the bladder appears as a sort of rash on the surface of the bladder. IT IS ALWAYS CONSIDERED HIGH GRADE and is especially dangerous for several reasons. First, because it is high grade, meaning that it has the potential to grow and spread relatively rapidly. Second, because it is not a discrete tumor, it is not possible to confidently remove it surgically, as in just cutting out the little mushrooms. We are very fortunate to have BCG available (when it IS available) since it has been shown to be very effective in the treatment of CIS.

In bladder cancer classifications, it is considered grade TIS.

Hope this clears things up a bit.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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5 months 2 weeks ago #56719 by Alan
You are simply on your way to beating this! One day at a time AND you will be stronger and more effective going forward!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 months 2 weeks ago #56717 by Regor

Vh9246 wrote: Dr told us cis which didn't penetrate the bladder stage 0. so I assume his stage was TIS..although dr never said TIS to us.


I've only been dealing with this for a few months, so I'd welcome any other words of wisdom.
My Staging quote below is from Cancer.org. Seems even in the medical field there's a disagreement into CIS - is it Cancerous or not. I guess for those who say it's not Cancerous (pre-cancerous), CIS would be stage 0. For Cancer.org and others, it has it's own stage of CIS Tis (Bladder Cancer).

With my Doctors advice and treatment, it's a life time of care and observation and I've come to the point of giving up on terminology. I've got Cancer and I'm fighting it!

CIS DX Jan 2019
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