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Here we go - CIS & BCG

3 weeks 4 days ago #58960 by Regor
Reporting back - Completed BCG re-Induction a few weeks back, 6 of 6, and no major Cumulative side effects. (Total 15 BCG treatments)

Next Cystpgraphy Feb 28, fingers crossed.

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete

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1 month 2 weeks ago #58868 by Regor

Knifedealer wrote: if your "induction" was a standard 6 treatments and the most recent Jan. 3 was re-induction (maintenance?) #4 (out of 6) then I'm puzzled how you arrive at "Re-Induction (#13 total)." I'd assume you've written #12 total (6 plus 6 reinduct) or #10 (6 prior plus 4 re-inducts in the bag already, so to speak). Granted, my math skills, like my memory, aren't what they used to be, if I remember correctly ;)


This should help you out with your math.... ;)

I'm on Re-Induction; After TURBT #1, 6 Induction, then a clear Cystoscopy, then 3 Maintenance, then a Cyctscopy which revealed something, we performed TURBT #2 which came back as additional CIS.

So a re-Induction (6 more in a row) was called for by my Urologist.

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete

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1 month 2 weeks ago #58866 by Knifedealer
Regor: Happy to hear you suffered no negative side effects from your most recent BCG treatment. That gives hope to me and others. Just curious, if your "induction" was a standard 6 treatments and the most recent Jan. 3 was re-induction (maintenance?) #4 (out of 6) then I'm puzzled how you arrive at "Re-Induction (#13 total)." I'd assume you've written #12 total (6 plus 6 reinduct) or #10 (6 prior plus 4 re-inducts in the bag already, so to speak). Granted, my math skills, like my memory, aren't what they used to be, if I remember correctly ;)

It makes one wonder if the body can build a tolerance that quick to something such as BCG.

Last week I completed my induction. While #2 and #3 produced quite the reaction, the negative side effects from #4 through #6 lessened considerably from one to the next. The last being similar to the first: some mild pain and discomfort.

Best to you. As they say in the deep south (of USA) BCG = Bladder Cancer Gitter

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1 month 2 weeks ago #58865 by Regor
Latest update:

BCG #4 of 6 Re-Induction (#13 total) - Had treatment on Friday 3 January, 2020. A welcome ZERO side affects, which is very odd, considering the Cum side affects have hit me every time.

It makes one wonder if the body can build a tolerance that quick to something such as BCG.

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete

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1 month 4 weeks ago #58814 by Canadian1
Hello Regor!

I just finished my second round today ( first round 6 treatments and second 3 treatments). I am now starting to feel the cumulative side effects as I go . Tiredness, low energy have been my two side effects. Have not dealt with fever so far

I agree that water intake following instillation is a MUST for me too; it is helping tremendously with frequency and pain while voiding.

Ginette

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1 month 4 weeks ago #58812 by Regor
Haven't checked in for a while, so thought I'd catch all up with my BCG experiences -

I'm on Re-Induction, after a repeat appearance of CIS. I started treatments on Dec 13, 2019.
BCG #1 of 6 (#10 total) - No side affected other than the normal fatigue. For me, the fatigue comes and goes, I normally am fully functional, doing chores, going to work, but I do tire easy and typically need a morning and/or afternoon nap.
BCG #2 of 6 (#11 total) - Besides the fatigue listed above, a slight fever of 99.2 on the day after treatment. Tylenol lowers it, but it stuck with me for a day and a half.
BCG #3 of 6 (#12 total) - Had treatment this morning, 2 hours treatment over, just chugging my water now.

WATER IS KEY !! I can tell if I'm not drinking enough on the day of treatment if the urgency and irritation is frequent. If I drink more water, it cleanses out my bladder and lessens the feeling of urgency.

Hope this helps someone out there going through the same issues.
Happy Holidays!!

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete
The following user(s) said Thank You: Knifedealer

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