Hello and welcome Braun1984. I had my first TURBT 10 days ago. It included an intravesical instillation of MMC, which was far from a walk in the park. I should know more this week when I meet with my urologist to discuss the pathology report and treatment recommendations. Fingers crossed.
While the information found at the link(s) below may not directly answer your question, you may find them helpful.
www.ncbi.nlm.nih.gov/pubmed/22014799
In the above, the authors indicate that "appropriate management of recurrence depends on the patient level of risk as well as previous treatment." Your questions are valid and I believe the person(s) able to answer them best, specific to your situation, would be those who are privy to this information (i.e., your doctor and/or treatment team) and then, ultimately, you. While others may share if they believe the treatment was worth it
for them, at the end of the day, based on all of the information I am able to glean, I am the one who will decide if it is "worth putting my body through" any treatment options recommended to me. I don't think we differ in this regard.
I found the article linked below to be informative. In it, the authors state: "one of the instillation schedules used in an adjuvant [applied after initial treatment, especially to suppress secondary tumor formation] setting is weekly mitomycin C 40 mg for 6 weeks, and in the case of negative cystoscopy, monthly instillations for 1 year."
www.ncbi.nlm.nih.gov/pmc/articles/PMC3263923/
How did you respond to the MMC dose during surgery? Have you fully recovered from the procedure? I ask because I having significant dyuria (burning, pain) and fear it may be a result of the MMC. The thought additional MMC frightens me.
Regardless of what path you choose, I wish you the best.
