Ed,
You are where most of us have been, still looking at the monkey on our back. You are smart to be prepared in any change which is where I am at almost 10 years after DX. First, I have learned to be vigilant but, also to take one day at a time. Who knows what the URO will find upon review after 6 weeks. There is still a good possibility that the BCG will work. Easy for me to say currently however I remind myself who knows?
From all the posts I have followed over the years most folks adapt and quality of life are still pretty good even if they have a cystectomy. I am copying a book mark many of us have saved with the 3 different diversions that are usually offered. If it comes to that, you want a surgeon that has done many of these. That means at least 25-50 a year (I finally read a site that quantified that but cant find it).
my.clevelandclinic.org/health/treatments/12546-urinary-reconstruction--diversion
The links don't seem to hyperlink so you'll have to copy and paste into your browser.
Let's simply hope it doesn't come to that. Keep posting as well learn from each other.
