reoccurance of TCC

6 years 7 months ago #53863 by Sean T
Replied by Sean T on topic reoccurance of TCC
I hope everything is going good for you.

08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 doses total - last March, 2018). As of latest cysto, As of May 4, 2023 - cancer free!

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6 years 11 months ago #53169 by emstorm
Replied by emstorm on topic reoccurance of TCC
I had a RC in 2010 following 6 BCG treatments. Had 6 months of gem/cisplatin chemo. Had a biopsy last week to determine that is was TCC on my vaginal wall and urethra - which was not removed. It was a bloddy mess but that has stopped now.

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6 years 11 months ago #53168 by sara.anne
Replied by sara.anne on topic reoccurance of TCC
I will be glad to offer encouragement...but you still don't know what you are facing. Have you had BCG? Was your original diagnosis low grade or high? Jack is correct, and until you get the results back from the pathology there is a lot unknown. It is so hard when uncertainty is there.

Will keep good thoughts for you! Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 years 11 months ago #53164 by emstorm
Replied by emstorm on topic reoccurance of TCC
thanks Jack

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6 years 11 months ago #53163 by Jack R
Replied by Jack R on topic reoccurance of TCC
Emstorm,

TCC has the nasty habit of coming back, sorry it has done so to you. You are being treated at one of the top tier placed for bladder cancer - I'm sure that is a comforting thought as you work through this.
It is always a happy occasion when we have a good checkup, and a disappointment when we have a setback. Hang in there and see what the doc has to say after the scan and workup. Waiting for answers is always the hardest part.

Best
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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6 years 11 months ago #53162 by emstorm
reoccurance of TCC was created by emstorm
After a bloody episode, biopsy came back showing reoccurance of TCC. Next up is a PET scan then I don't know what. I am being treated by City of Hope. Any comments.words of support???

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