Again, like Alan, I have not had a cystectomy. You might use the Search function at the top right of this page and search for "urostomy" or "urostomy supplies."
Several members in the past have commented that they contacted every supply company that they found (Google it) and asked for advice. These companies were generous with advice and often provided free samples of various products for the patients to try.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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