Anyone else getting Tokyo BCG?

4 years 1 month ago #59088 by Knifedealer
Replied by Knifedealer on topic Anyone else getting Tokyo BCG?
No, I'm not involved in the trial. Are you going to MSK for these or are you still being seen at Strong? Just curious. I lived in NYC for many years (after graduating from Brockport) before moving back to Central NY. I know the drive well.

How have you been sleeping lately?

Finally, with respect to your question regarding long-term disability eligibility, I'm 63 and retired after a 30 year stint working for Uncle Sam. I'm not eligible for long-term disability.

Best to you.

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4 years 1 month ago #59081 by Shacky73
Replied by Shacky73 on topic Anyone else getting Tokyo BCG?
Yes Phase III trial is to get Tokyo version approved in US and see if priming dose a week before induction helps with response.

So there are 3 groups:

Merck TICE BCG as usual.
Tokyo BCG with typical TICE protocol
And Tokyo plus prime injection one week before

T1 Grade 3 with CIS

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4 years 1 month ago #59079 by Regor
Replied by Regor on topic Anyone else getting Tokyo BCG?
I've always thought there was only one BCG manufacturer for the USA- Merck. I guess with a study they get around that?

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete

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4 years 1 month ago #59075 by Shacky73
Anyone else getting Tokyo BCG? was created by Shacky73
Had my second dose Tokyo BCG yesterday. Urgency and burning more that first dose last week. Blood for couple hours after and either clots or tissue occasionally.

I read the Tokyo version has a higher amount of the BCG bacteria. I’m in clinical trial and in leg that gets standard treatment with Tokyo BCG - no priming.

Anyone else getting this?

T1 Grade 3 with CIS

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