Shell Shocked

16 years 8 months ago #6681 by Rosie
Replied by Rosie on topic Shell Shocked
PWeddy,

I know Dr. Lamm recommends regular BCG treatments for those with CIS - Carcinoma in situ and some with high grade transitional cell. Was yours Carcinoma in situ? Rosie Ambs

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16 years 8 months ago #6678 by Alice L.
Replied by Alice L. on topic Shell Shocked
Thank you, Paul, for the reply and explanation. I have had nothing but recurrances for the last two years. I might have to mention this to my new Uro coming up the 18th and see what he thinks.

Glad to see you staying ahead of the game with no recurrances.

Alice

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16 years 8 months ago #6677 by PWREDDY
Replied by PWREDDY on topic Shell Shocked
BCG is to prevent cancer from recurring. Thus you follow Dr. Lamm's protocol. No one has ever come up with anything better, and he has had the best results with his schedule. This mean little cancer can come back 10- 15 years later. I don't want it back so I have followed his protocol. The pain and problems each year are far better than having cancer again and, maybe, losing my bladder. The three treatments are one each week for three weeks.

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16 years 8 months ago #6675 by Alice L.
Replied by Alice L. on topic Shell Shocked
Paul,

You stated, "I'm now 7 and 1/2 years out and, knock on wood, no recurrance." But yet, you still take three of them (BCG treatments) a year.

Question is: If there is no recurrance then why are you still being treated with BCG?

Alice

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16 years 8 months ago #6674 by Patricia
Replied by Patricia on topic Shell Shocked
Not everyone reacts to BCG treatments the same.....some sail through it with very little reaction and not every major cancer center follows Dr. Lamms protocol.

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16 years 8 months ago #6673 by PWREDDY
Replied by PWREDDY on topic Shell Shocked
Rosemary:

Be sure to read Dr. Lamm's protocol on this WEB site. As I recall it used to call for 6 instillations of BCG, then 3 every 3 months for 2 yrs, then 3 every 6 months for 2 yrs, then 3 every year. I think the annual is now bi-annual. Don't listen to me. Read Dr. Lamm's protocol in detail for yourself. The first 6 are absolute hell. I bled like crazy after the 4th, 5th and 6th and it hurt like hell, but I stuck with it.

Best of luck to you.

PAUL

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