Hi Linda,
My sister has a Ta, Grade 1 tumor, a couple of recurs and then they just stopped coming for the past 6 yrs. She had no further treatment aside from TUR.
Before you can decide about whether BCG will be of real help to you (Rosie is correct that there is not a lot of data stating it helps low grade tumors and is best on high grade and CIS), you need to know what grade the cancer was. That said, multiple recurs raises the risk, which means further treatment *may* be warranted (or not). In my sister's case, no treatment was needed. But she definitely had grade 1 tumors.
The new way of grading tumors is to use either high grade or low grade, no intermediate! The experts and the WHO(World Health Org.) are trying to get uros to standardize this around the world. It's not that new, either, but is slow in getting picked up. The point being that grade 2 would no longer exist, forcing a urologist to treat the cancer as if it's either *truly* low grade, non invasive and very unlikely to spread, or not. In which case it would called a high grade tumor. Chance is very big your uro is not yet using this new system, but it would certainly make things clearer for everyone if they did start.
Pathology for bladder cancer is extremely difficult, so much so that experts are on the verge of saying all patients should have their slides read by a uro-pathologist. Opinions on pathology can vary widely as it's a subjective test and experience counts. When any doubt is there, get a second opinion, that's the guidelines about pathology, which is arguably the most important step on getting the best prognosis possible.
If it's within your means, consider a second opinion for everything to ease your mind about which path you take. And of course, once you make that decision, don't second guess it and just go for it.
This is a survivable cancer and you can get through this and come out the other side, although life is never quite the same after a cancer diagnosis, no matter what grade it is.
Wendy