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First cysto - post TURBT

4 months 2 weeks ago #56993 by Alan
Thanks for the updates! It helps everyone. I would guess the "napalm" is the irritant! As always just keep the followups.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: Knifedealer

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4 months 2 weeks ago - 4 months 2 weeks ago #56992 by Knifedealer
Just checking back, in part because I said I would, in part because this forum is the best chronicle I have to track my process, and in part maybe my experience may help others.

I had my first post-TURB cystoscopy today, Monday, March 4, 2019. In November 2018 a TURB was performed to remove 2 small (1 CM or smaller) low grade papillary urothelial carcinomas that were both negative for lamina propria and muscularis propria invasion. When I received the pathology report, I presumed I would be obsessed with my condition for the foreseeable future. This has not been the case. In fact, there are times when I forget entirely that I am being treated for cancer. So, at least until now, cancer hasn't ruled my every waking moment.

I understand that for some, a cystoscopy is only mildly annoying while others find it agonizingly painful. My first cystoscopy (when the tumors were found) was more of the latter. I'm happy to report that today's procedure was significantly less painful and clinically mostly unremarkable. While no evidence of tumor recurrence was noted, my urologist did find an area that appeared inflamed and the area was clearly more vascularized than the rest of the interior bladder wall. He said it could be irritation from the mitomycin instillation or could be the precursor for a new tumor(s) as tumors need a blood supply. Since the mitomycin caused significant burning and pain for a week or 2 after the TURB, I'm sure (wink, wink) the suspect area is "just" irritation caused by the napalm ... err ... I mean mitomycin.

So I'm going to continue living life in a very big way until June, when I get to see my urologist again for another cystoscopy.

Thanks for your support and best of luck to all.

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