BCG treatment and concurrent pulmonary emboli

5 years 3 months ago #56369 by Jack R
Bowline,

While my shoes are different than yours, you raise a commonality that happens all too frequently. While treating for bladder cancer it is critical to keep your other doctors in the loop. The urologist needs to hear your concern about blood thinners and BCG, AND your GP or Pulmonary doc needs to hear about the BCG plan.

Bladder treatment can go on for an extended time. Get all of your care team(s) on board and ready to coordinate your care when needed. With such a focused question of BCG & blood thinners, it is only YOUR docs who will have any idea of how your might respond to the combination.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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5 years 3 months ago #56365 by Bowline
Hi everyone,
I am on my second round of BCG for a non-invasive CIS. Prior to my first round, I underwent varicose vein ablation in my left leg. A clot was discovered in my upper femoral vein for which I was placed on the blood thinner Xarelto. One week later, I passed blood in my urine, which resulted in an immediate referral to a urologist. i was taken off of the blood thinner. Following a cysto and TURBT, and a diagnosis of a sesile CIS, I received a course of 6 BCG treatments without incident. There was no bleeding, as far as I could tell. Following another cysto and TURBT, there was still a small tumor present.
After starting my second round of BCG, I developed severe pain around the base of my rib cage, mostly in my back. i was diagnosed with pulmonary embolism, and placed on the blood thinner Eliquis. After 1 week, no bleeding has occurred, and I will have my first BCG treatment today while on the blood thinner.
Has anyone else had BCG treatment while on a blood thinner? If so, how has this affected your treatment?
Thanks!

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