How fast does HG CIS & HG papillary tumors spread?

Hi,

Have you asked for a 2nd opinion on your treatment? We are not doctors here so it would be worthwhile seeking other doctors' advice, such as from John Hopkins or any other NCI hospitals. They would be more objective to your case. I bet they would be more possible to answer your question as well. I heard it would not take long to get the 2nd opinion and believe me, it would help resolve the uncertainty.

Good luck to you!

Thanks Alan.

I do have the emails to both oncologists asking advice, so I feel that some movement of some sort should come from that. If not, then yep, I may have to go to another surgeon.

Thanks a bunch for your quick response again. Just a listening ear on a bad day means so much.

Hi Alan-

Thanks for the quick response. I live in Charlotte, NC and the surgeon is one of the most highly rated at Levine Cancer Institute. They said since it takes 8 hours, and a 2nd surgeon for the hysterectomy part of it, that it is very hard to coordinate with them for a full day and therefore Oct. 10th is the soonest. This is very frustrating since the other oncologist said I don't have but a month, (which is up mid-August). I hope that I do not have to go to a surgeon that is not as good. I am not yet stage 2, but he is concerned that the CIS tumors will spread to my urethra, uterers and uterus soon.

I am hoping that they can at least do some type of treatment to keep them from spreading. They suggested Gemcitabine and Doctaxel if I wanted to try one more treatment. Maybe I can get that now to keep the CIS from spreading.

I've decided to have a cystectomy since my treatments did not work and I have HG Papillary & HG CIS tumors. The first surgery slot is not until October 10th (74 days from now). I saw 2 oncology specialists this month and one said I had a month tops till mine spread outside of the bladder. That was on July 18th. What in the world do I do now??? Any advice out there?