3 days 20 hours ago - 3 days 8 hours ago#54916by Alan
Sara Anne along with others here are a solid rock of info. I am adding my 2 cents as a 10 year survivor. The majority of us will pass on from something other than bladder cancer. Add a favorite piece of advice that I got years ago is: "take everything one day at a time". Each day has enough worries. Easy to say but, enjoy life's journey! You will beat this!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
I appreciate you more than you know. These are all things I need to hear and think about. I hope none of it needs to happen but you're right, I do need a plan.
Will be praying for you all,
I am sorry if we have contributed to your worry, Joanne. We will hope that you got it this time and that it won’t return. The odds are that it won’t. But if it should you need to be ready to face it head-on. I know that I have an imaginary file cabinet in the back of my mind where I have all sorts of contingency plans stored away “just in case.” It has now been ten years and I haven’t needed them. But if the day comes I will be ready.
And yes, it would be a good idea to discuss with your doctor what his plan might be if it does come back.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Honestly I'm a little taken aback. I assumed that since it was the same that it wasn't any more to worry about, according to my doctor. Now I'm pretty scared. I will talk to my doctor at my next appt. I don't know what to do now. Thank you Sara Anne.