BCG with Interferon

6 years 3 months ago #54446 by cltyxx
Replied by cltyxx on topic BCG with Interferon
That's great and hope it stay that way!

Cltyxx

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6 years 3 months ago #54445 by George9
Replied by George9 on topic BCG with Interferon
Hi,

Had second TURBT in August, after 6 BCG treatments. Because of this, doc. combined the BCG with Interferon. Had a cystoscopy in November in the o.r. as a precaution if a TURBT was necessary. Thank God, the combination worked!! I am now scheduled for three more combo. treatments starting this Tues. and a f/u cystoscopy in February. We shall see, at least I had one good report, and pray that I will have many more. Wish the same for you.

Thank you,

George

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6 years 3 months ago #54444 by cltyxx
Replied by cltyxx on topic BCG with Interferon
Hi VinceD and George9,

How are things going there! Hope everything goes smoothly!

cltyxx

Diagnosed on 03/23/2017
TURBT#1 04/06/2017, Pathology report not conclusive
TURBT#2 05/26/2017, HG T1, No cancer found
BCG 6 treatments finished on 08/11/2017
Cysto: 11/14/2017 Biopsy: 11/27/2017 It came back!
TURBT #3 scheduled and then BCG + Interferon

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6 years 5 months ago #54193 by George9
Replied by George9 on topic BCG with Interferon
Hi Vince,

Thank you for thinking of me. Glad that you made it through your treatments. I was told that two hours is ideal to hold it, but like you, have only been able to hold for 1 1/2 hours. I couldn't have my 3rd and 4th treatment due to a lot of blood and leukocytes in my urine. They thought I had a urinary tract infection, and they wouldn't do them. As it turns out, it's wasn't a u.t.i. after all. Both cultures showed no growth, and the doc. thinks this is just how it's going to be with me. After the treatment, I get some blood when urinating, but usually resolves itself it about a day and a half. So, I am having my 6th treatment on Thursday, had to make up for lost time, and then to the hospital for cystoscopy on 11/15. Doc. wants to do it there this time in case another tumor is there. I hate the thought of being put out again, but I guess it's better than waiting for a surgery appt. if I had the cystoscopy in the office.

I have
LOTS of fatigue with this combo., and lots of spasms. I was going to try the AVO, but it said that there is a lot of side effects, and I didn't want to chance it.

Again, thanks so much for keeping in touch and giving me an update on you. I wish us both the best of luck. Please let me know the result of your cystoscopy after you have it.

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6 years 5 months ago #54192 by VinceD
Replied by VinceD on topic BCG with Interferon
Hi George, I was thinking you have completed your 6th treatment. I hope you are recovering well.

I finished mine on Friday. I will go back in for Cystoscopy on December 8th. I've had some cumulative effects with the BCG/Interferon, which have been uncomfortable. I was only able to hold the 6th treatment for about 1 hour 20 minutes before voiding. I've noticed more muscle and joint pain than I had with the first set of 6 BCG treatments.

I found that I have had more discomfort urinating this time around as well. I am hoping that is actually a good sign that they treatment in working. Been taking plenty of Azo and drinking a lot of water to flush things out.

Hope you are doing well.

Vince

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6 years 6 months ago #54036 by George9
Replied by George9 on topic BCG with Interferon
Hi Vince,

Had the second treatment of BCG with interferon today. Same as last week, lots of bladder spasms and some blood. When I first went into the office, gave a urine sample, and it showed that I had some blood in the urine. She said that some doctors consider that a positive, like it's working to get rid of the junk. Maybe that's why you had the clots. I was told that fatigue is a common symptom, and I can attest to that from last week. Hoping it doesn't happen again.

Checked the post about the water. Thanks. I am going to take it easy from now on.

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