BCG and continuous sleeping

6 years 8 months ago #53701 by Alan
Replied by Alan on topic BCG and continuous sleeping
Pretty normal. It took me a full 1-2 months before I really felt normal. If I remember correctly, you are the lady that I recommended Dr. Mansell Harris to see? Sounds like he has you on a different regimen than I was on. He had me do 6 treatments, a 6 week wait/scope and then just 6 more and that was it. It does tell he "customizes" each case which in good as everyone is different. As I remind many, this is doable and a lot simpler that chemo. As Sara Anne said "It shall pass" but, I still let the doc know!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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6 years 8 months ago #53700 by Jfoutz
Replied by Jfoutz on topic BCG and continuous sleeping
Thanks Sara Anne!
This is terrible, not having any energy and not being able to stay awake.
I'll send a message to the doctor if I'm not better soon

Janice

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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6 years 8 months ago #53699 by sara.anne
Replied by sara.anne on topic BCG and continuous sleeping
Janice, as you noted, fatigue is probably the most common side effect of BCG. Boy did I have it!!! But you may want to mention this to your doctor.....

"This too shall pass":laugh:

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 years 8 months ago #53698 by Jfoutz
BCG and continuous sleeping was created by Jfoutz
I have had a total of 15 BCG treatments. Now I can hardly keep my eyes open and so tired. It's been 2 weeks since my last BCG, has anyone else had this problem this long?
I did not have any bad symptoms, just a little tired for a day or two so I'm a little concerned.

Janice

Hematuria 4/2016
TURBT 5/2016
BCG 7/2016
Reoccurrence 2/2017
TURBT 2/2017
BCG 4/2017
BCG maintenance 7/2017

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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