Out of the woods yet ??

6 years 11 months ago #53375 by Jack R
Replied by Jack R on topic Out of the woods yet ??
Ozark,

The only mention of BCG and 12 year consideration comes from Dr. Donald Lamm, who's SWOG protocol calls for a final maintenance round at 12 years:

"Maintenance is given weekly for 3 weeks at 3, 6, 12, 18, 24, and 36 months. I have omitted the 30 month treatment, but in high risk patients continue at 4, 5, 6, 8, 10 and 12 years to reduce the risk of late disease recurrence and progression. We recommend 1/3 dose BCG during maintenance and I would recommend further reducing to 1/10, 1/30, and 1/100th dose in 50cc in any patient with increased side effects. The benefit of BCG is gone 10 years after the last treatment."

Source: bcgoncology.blogspot.com/

The final sentence may help decide on continuation of maintenance. See what your doctor thinks, and let us know. Many of us would like to be 12 years post initial treatment. Congratulations!

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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6 years 11 months ago #53372 by Alan
Replied by Alan on topic Out of the woods yet ??
Ozark,

I am 9 years out so congrats on being my "front door". I am not sure anyone is totally out of the woods but, I am sure probabilities are it is gone. That said, i will continue my yearly checks. Congratulations to you.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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6 years 11 months ago #53369 by ozark1
Out of the woods yet ?? was created by ozark1
Had op. for early stage cancer 12 years ago. Removed piece about size of silver dollar. No Chemo or radiation. Did full BCG series. Had 2 PET scans..2 prostate biopsies..and have had CT scan and cytology/blood workups every May since. Nothing further has even shown up. Is there a reliable recurrence school of thought for 12 years out ?...thanks..JV..

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