Concerned

7 years 4 months ago #52379 by DougG
Replied by DougG on topic Concerned
Hi Gizmo,
We are from East TN also. Doug sees Dr. Bowles in Oak Ridge; he is good. We have also been to Vanderbilt; it is an excellent place to get a second opinion and for more complicated surgeries.

Anita
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7 years 4 months ago #52378 by gizmo
Replied by gizmo on topic Concerned
My first urologist did cystoscopy and didn't see anything and said let's go back in and look and I just wanted another opinion. My urologist now says he sees nothing and is doing cystoscopy every 4 months. I'm in Tennessee and about 4 hours from Vanderbilt I go to university of Tennessee in Knoxville to a urologist thanks for your comment

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7 years 4 months ago #52377 by sara.anne
Replied by sara.anne on topic Concerned
Sorry to hear that you are still having "issues." Did you get your second opinion at a major center that treats lots of bladder cancer? What was the original path diagnosis? Have you received BCG? What was the second urologist's opinion on the cause of the bleeding?

It is considered good procedure to do a second TURB if there is any question at all about the original diagnosis. Often the first time a biopsy is done the doctor is sort of going in "blind." If he is able to do a second one, the results of the first provide a sort of map so that he knows where the problem areas are and can concentrate on getting really good path samples there. Why did you not want this done? There have been multiple clinical studies that show that a second TURB can increase the accuracy of a diagnosis significantly.

Hope you are able to get this cleared up.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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7 years 4 months ago #52376 by gizmo
Concerned was created by gizmo
I was diagnosed last November surgery only still blood in urine when checked dr wanted to go back in I wanted a second opinion new dr said no but still blood. What do I do now?

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