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Beginning BCG

3 years 8 months ago #51273 by Jfoutz
I sure will!! So glad I found you here!

Janice

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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3 years 8 months ago #51272 by sara.anne
Good for you!!! Keep us posted on how things go

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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3 years 8 months ago #51271 by Jfoutz
Sara Ann,
Thanks one more time for explaining that to me. I have decided to have my 2nd TURBT done in Dallas. Ironically I got a call from MD Anderson today, to schedule an appointment, but I found a great doctor in Dallas I think I'll stay with. I can always get another opinion from them.

Thank you,
Janice

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018
The following user(s) said Thank You: lotech35

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3 years 8 months ago #51270 by sara.anne
Think your uro is speaking of apples and you are asking questions about oranges! Mitomycin is often used as a "wash" immediately after a TURB to be sure that no cancer seeds itself because of the TURB releasing bits of tissue. BCG is, as the others have explained, a protocol for treating high grade, non-invasive bladder cancer OR low grade that keeps returning. Occasionally Mitomycin has been used in a protocol similar to BCG .....for example when BCG was unavailable about a year ago, or if BCG doesn't work...but it is not as effective as BCG.

I think your plan to go to UTSW is an excellent one. Why not let them do the TURB?

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: lotech35

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3 years 8 months ago #51267 by Jay
Seems like each Uro decides the treatment with BCG depending on the individual. I was high grade, non invasive and am now starting my 2nd year of BCG every 3 months for 3 weeks. After the 2nd year I'll be on a 6 month BCG for a while. I didn't ask him when I'll be yearly, too much to think about right now. Jay

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3 years 8 months ago #51265 by Jfoutz
Thank you so much Lily. I'm just a nervous wreck and
I appreciate you explaining this to me.
Best wishes to you!

Janice

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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