3 years 2 months ago - 3 years 2 months ago#52546by Sean T
I'm in week four of my BCG treatment and up to today everything has been smooth. But I'm feeling a little rougher today with a bit of incontinence, which brings me to my question - my doctor said that I should put a gallon of bleach in toilet after urinating the first time (after waiting two hours, of course), and letting that sit for a long time (I forgot the length); but other information providers say I should use a cup of bleach after every urination for six times. I've been going with what my doc said but since I'm having a touch of incontinence, am I more vulnerable to getting TB (i.e., if a little pee gets on my clothing, etc.)?
08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 rounds total - last March, 2018). As of latest cysto, Dec 10, 2019 - cancer free!
I'm hoping the chemo worked and I can start a maintenance cycle, if not then I'll be looking into a neobladder.
I would rather not have the surgery but it
Might lead to that. It's hard to believe this all started last September! I hope the best for all of US!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....
mbmccauley: I hope your treatments go well. I'm with you there, just can't get that reoccurrence bit out of my head either. I try, it works for a while and then as soon as the next BCG roles around, so does that thought. I was told, no use of worrying about something that hasn't happened yet and might not even happen. I try that thought whenever I can. This forum is a great relief sometimes. Hoping the best for you!!!
Sean T: I had my first BCG treatment over 2 years ago and after my first treatment there was a shortage. I had to wait 6 weeks before I had my last 5 treatments. Sara.Anne assured me (even though she states she's not a Doc, but she's good advice) that it won't matter having the delay. Over 2 years later and doesn't look like that delay didn't bother a thing. Glad to hear you have no side effects, I get the usual most common, but you get used to them after a while. Wishing you the best!!!
Lotech35: I haven't been around for a while and I read some other posts, how are you doing? I had finished my 2 years of BCG treatments in September and now on a 6 month program. It's also a little different protocol for me. A new Urologist is now in place and instead of taking samples after BCG, he visually inspects before treatment and after treatments. He makes sense stating that each time scraping/samples are taken, scar tissue form and the elasticity of the bladder weakens in time. He states he can tell if the cancer has returned, if in doubt he will take a sample for testing. The scar tissue issue makes sense to me, I'm sort of nervous going on the 6 month cycle, but that is protocol with most facilities. I see him in a couple weeks for the look, will get my 3 week BCG schedule and see what happens. Hoping for the best for both of us and everyone else in this forum!!!
Sara.Anne: I appreciate your thoughts on the this "mostly looking" protocol?
Wishing the best possible Holiday Season for all!!!