Effects of BC

9 years 10 months ago #46454 by kwhite65
Replied by kwhite65 on topic Effects of BC
Well just got my 4th BCG treatment this morning. I had something happen that happened after my 2nd treatment. I Dont know whether this has anything to do with treatment. Both times I came home. Waited an hour started drinking water. Went to release urine and had diarrhea. Same thing happened today but I didn't make the 2 hours. Had to get to bathroom quickly after an hour and 45 minutes. This has me baffled. Has this happened with anyone else?

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9 years 10 months ago #46422 by sara.anne
Replied by sara.anne on topic Effects of BC
I understand your frustration, Gina. We used to have a way to contact other members on the Site and ran into some real trouble and had to discontinue it. The Board is discussing ways to safely reinstate such a service.

Meanwhile, you can contact our president, Cynthis,

American Bladder Cancer Society
399 Main Street - Suite 2B
Dalton, MA 01226-1612
Telephone: (413) 684-2344
Toll Free: (888) 413-2344

And she can arrange this, if you both agree.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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9 years 10 months ago #46419 by yellowroseli
Replied by yellowroseli on topic Effects of BC
Gina, Sorry we are unable to connect privately. There should be a way to discuss this where it is not public to everyone.
Maybe they will look into this for us.
Linda

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9 years 10 months ago #46418 by gina
Replied by gina on topic Effects of BC
Yellowroseli..I have also had concerns about my bowels/rectum for quite a while...SaraAnne sorry if I did something against site rules...although I am well aware of the risks taken by placing my email address publicly here...sadly this topic is not one I personally feel comfortable discussing in depth openly here in a public forum, as I am sure the moderators would prefer! :( any suggestions as to how two members can connect privately as we once did?! Thanks in advance!

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9 years 10 months ago #46417 by yellowroseli
Replied by yellowroseli on topic Effects of BC
I just got CT results back and it says I have thicking of the Bladder Wall. Sounds Like the BC is back. ugh

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9 years 10 months ago #46416 by sara.anne
Replied by sara.anne on topic Effects of BC
Sorry that I had to delete a reply to you....for our member's security we cannot allow posting of individual email addresses!

Just because you do not have an appointment until July, you certainly can call your doctor!!! I usually have better luck asking to speak to his nurse, or ask to have her call me. Then she can ask the doctor if necessary. I suggest you do this first thing on Monday.

There is no point in being uncomfortable or concerned. We are paying them enough!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: yellowroseli

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