Thanks to everyone for your replies. My last BCG instill was two weeks ago tomorrow. My rash/hives still persists - sometimes with a vengeance. Benadryl is keeping it bearable – sort of.
Joey, thanks for sharing your personal experiences with your rash. I’m beginning to wonder if my rash, like yours, perhaps is really more of an intense immunological response to many allergens, instead of just BCG. Minor scratches become red within a couple of hours. This, it would seem, is a positive response (?)
Thanks Sara Anne for your suggestion to contact Dr. Lamm. One of my docs at the VA knows him well and is going to contact him to see if I’m a good candidate for interferon or perhaps something else. Hoping to hear something soon.
Mike, I did have Mitomycin C post-op twice. The first TURBT there was some concern that the growth was a T2 - which precludes using MMC.
Phillip