Hi All: I just finished by 5th dose of BCG last Thursday...When I arrived for my 4th dose the Chemo nurse said I had Blood in my urine but not to worry. But from what I read here BCG is not usually administered if there is blood in the urine. I consequently discovered that she does not wait for the current Blood and Urine labwork before administering BCG, she uses the Labwork from the week previous. This all seems quite unusual to me. This Thursday when I arrived I had my Lab work done and then went to her office and told her that the urine this week had much more blood in it than the week before....she called up the week before and said there was an elevation of white and red cells but that she would have the Physician Assistant come speak with me of which he did AFTER she administered the BCG. My husband on the other hand went to the Oncology floor to ask for my Doctor, but he was in surgery and not expected out for hours. Also, it's the Army..... So this is worrisome to me.
Secondly, after I leave the hospital and on my way to the hotel (because we live 100 miles away), the pain begins. It is like my Urethea is turning inside out and this last for at least 3 to 4 hours with no more than a drop of urine. The Physician's Assistant gave me Detrol before I left the hospital but this did not help and neither does Pyridium. What I have noticed is that after 3 or 4 hours (and 16oz of cranberry juice, 34 oz water) I pass a considerable amount of "trash" (clots, what looks like stones, tissue etc) and urine....then after this it's just the burning etc which is tolerable and somewhat relieved with pyridium. Has anyone experienced this and if so what helped?
Luckily I only have one more BCG (#6 - Yeah) next Thursday and then a break....Thanks to anyone who can help...
Take care,
Sandra